Here's an article explaining the recommendation of the
Academy of Medical Royal Colleges that doctors should write to patients in plain
English. It also contains a video demonstrating why – though the level of
ignorance by some of those surveyed is rather worrying.
The idea seems uncontroversial enough, doesn’t it? On the
one hand, write complex medical terminology and have your patients worriedly rushing
to Google to make sure they’re not going to die in agony or grow two heads. On
the other, use good old no-nonsense terms that everyone can understand. But I,
for one, am concerned.
Don’t get me wrong, I hate waffle and babble as much as the
next person. Having spent time working in the NHS, I know that it’s got jargon down
to a mighty fine art. But here’s what worries me.
First, I don’t have enough faith in the medical profession. Of
course, there are some amazing clinicians, but there are some terrible ones too
– not terrible at treating people, but terrible at communicating with them. In
2003 I was diagnosed with a serious and progressive eye disease. This had
apparently become evident during the consultation, but the findings were never
explained to me. Then the clinic letter duly turned up a few days later,
spelling out to my GP what was wrong. Off to Google I went. In 2015 I was
diagnosed with glaucoma. A registrar then proceeded to tell me that the
indications had been there for years but that they probably didn’t think it was
important to tell me given that I had no vision to be affected – never mind the
awful headaches I’d worried about for years and the simple fact that it’s my
right to know. Far more alarmingly, thinking of people close to me, conditions
as serious as MRSA and sepsis have been revealed by slips of the tongue or
notes carelessly placed on the end of the bed and scrutinised by anxious relatives-turned-detectives.
And if that’s just me, there have got to be many others who have experienced
the very mixed bag that is medical communication. At least in a letter, doctors
can express themselves in their own words. Adjusting one’s writing style is
hard. You should never assume any of us has the ability to simplify our
language and find it just as easy to get down all the key information. Why take
the risk?
Next, plain English can only serve to benefit the patient.
This is, in my view, to misunderstand the purpose of the letter. It is not, and
should not, be the place to explain things to a patient. This needs to be done
in a consultation, where adjustment can be made for the sensitivity of the
situation and the emotional needs of the patient. Stressed and under
intolerable pressure, it’s not unreasonable to imagine doctors leaving some of
the explanation to the letter if it’s to be written to the patient himself. It
is there to give the facts, and to support GPs and other care professionals to
meet the on-going needs of that patient. For this purpose, your classic clinic
letter works fine.
And finally, when all is said and done, we do have Google. I’m
afraid the great and the good of the medical world sometimes still think of the
passive patient turning up to be told what’s wrong, what to do and what to be
aware of. They look upon self-help and searching the internet with anything
from astonished bewilderment to snobbish disdain. In this, they make a mistake.
The need to dumb down for us puts us at risk of missing information, is another
burden for overworked and busy doctors and is just patronising. I want my builder to be good at making walls
that stay upright; my barber to be half-decent at cutting hair, and my doctor
to know a thing or two about the body. I don’t expect or care if any of them
don’t always express themselves that well, or write with the plain-speaking
brilliance of a blog like this. (Joking of course).
I can’t sum it up more succinctly than this: if it ain’t
broke, don’t fix it!
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